• 2013 C17 Gathering

2014 USA Gathering

Interested in traveling to Dallas, Texas, USA this year? Join Koolen-de Vries Families July 26, 2014 and make some new Kool friends!.

Newsletter Archive

Are you signed up for the Supporting Families with Koolen-de Vries Syndrome newsletter? Sign up at the top of the page! Find past editions by clicking the "Read More" button below.

Medical Advisory Board

We are pleased to announce the formation of a Medical Advisory Board. Thank you to Dr. Koolen, Dr. de Vries and Dr. Mefford for joining our team! Additional details to follow!